“Getting Our Lives Back”

The documentary, Getting Our Lives Back offers an inside look at the Fibromyalgia spectrum.  It is UK-based, and the drug they talk about I do not recognize, but the number of people affected and the descriptions offered are universal.

There is a lot of confusion about the name of this disease – Fibromyalgia, Chronic Fatigue Syndrome, or Myalgic Enchephomylitis – all have been used to describe my condition.  Most importantly, it is a real disease, can be very debilitating and requires further attention from the medical field.

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Permission to write, paint, and imagine are the gifts I gave myself when chronic illness hit - a fair exchange: being for doing. Relevance is an attitude. Humour essential.

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