Just finished watching Jennifer Brea’s award-winning documentary on ME/CFS entitled, Unrest, and so many thoughts are racing through my mind. This is an important film, not just for the millions missing because of this disease and their loved ones; it should be required viewing for all who work in the field of medicine, and those who influence it.
I am struck by Brea’s bravery: her willingness to share her most vulnerable moments with the camera. I both wept with the familiarity of it all and smiled to see that others share in what feels like such an isolated condition.
ME/CFS is a loss of vitality; it is an unforgiving brick wall that stops individuals from carrying on with careers, interests, and even routine functioning.
It is also a beginning: an opening of sorts, perhaps intangible at times, and yet, inarguable. Watching Unrest, I am reminded of all the firsts I experienced after two years of being bedridden: the first time I got my hair done, attended a movie theater, went out for tea with a friend.
Unrest is a story of loss; it is also a story of overcoming. It is tragic, and heroic, and beautiful. In the words of my husband, who viewed it with me: “It is enlightening.”
Please watch this incredible documentary, and let others know. Millions missing will thank you.
( Unrest is available on itunes. Follow Jennifer Brea on Twitter @jenbrea.)
Writer, avid reader, former educator, and proud grandmother, currently experiencing life through the lens of ME/CFS. Words are, and always have been, a lifeline. Some of the best adventures, I'm discovering, take place in the imagination.