Junk Drawers

I’m attending Restorative Yoga classes. It is yoga positions totally supported. Relaxing. Focus on breath and on releasing tension. We do something called supported fish (I think) – lying face down with a bolster under our hips. “Our junk drawers”, the instructor says and I almost laugh out loud. The last time I went for […]

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Chronic Illness vs Depression

“How do I know if I am depressed or it’s just the exhaustion of ME?” I asked my therapist in the early days of being bedridden with Myalgic Encephalomyelitis. “It’s simple,” she answered. “With depression, you lose interest in the things you usually love, so you don’t bother. With chronic illness, you want to engage, […]

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Inevitable

Still consumed with tests and medical appointments. Thought we had come to resolution on one issue, but the treatment didn’t work, and so we start again with another biopsy. Likely as frustrated as me, the doctor is now pointing fingers at other medications as being the culprit. Trouble is that I need those treatments to […]

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Boxed and Categorized

“Let’s just talk about what is relevant here.” I nod as the doctor peruses my list of diagnoses and symptoms. It’s lengthy, I admit, but how am I to know what relates and what doesn’t? Isn’t it all a part of the whole? I’ve waited almost two years for this appointment, although he tells me […]

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Passion Asserting (haiku)

It has never been enough for me to just survive. Is this a fault or an asset? Hard to say. All I know is that life has certainly challenged my conviction…and still, passion asserts itself. (Art my own)

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A Change of Venue

The biopsy was July 12th. My follow up appointment was not until September 4th. Having been through many of these, we concluded that there was no diagnosis that would disrupt travel, so went ahead and planned. We would fly out on the 7th. After seeing the specialist. Turns out there was a concern with the […]

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Packing

We’ve decided, after five years of being homebodies, to try travelling again. He’s making reservations, while I make to-do lists and try to decide what to pack. Excited by the possibility, he draws up ambitious itineraries, and I’m feeling reality close in. What won’t fit into any suitcase, I gently remind him, is the promise […]

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Prolonged Illness and Isolation

“Isolation is seldom listed as a symptom of chronic disease, but it certainly is a component.  The need for human interaction is very real, in fact, psychologically, I would say it is essential. Making a conscientious effort to reach out to others, balancing social activity with limited energy, and valuing myself enough to keep the […]

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Trauma (tanka)

Took some time to re-evaluate where my energy goes, as my health has been deteriorating lately. The one thing Myalgic Encephalomyelitis teaches is that energy for anything (be it mental, emotional, or physical exertion) is limited. Trying on a stripped back existence in order to reset. That has meant limited screen time. “The idle mind is the devil’s […]

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Perpetually seeking Balance

Bit by bit, these Autumn days have drained me, and still I push. First there was the trip to Toronto for tests (none of them revealing answers), then; we decided to host Thanksgiving, which involved three days of preparation (I thought I’d be okay if I did most of the work in advance), and then; […]

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