Shake Ups

The new year grabbed me in a choke hold and hog-tied me before I had a chance to even think about what it might bring. It started with a text that my mother was in hospital, followed by a harried searching of flights and anxious speculating about how I’ll get home. Me, who hasn’t ventured […]

Read More

RV-Able: Flexibility Required

“I’d like to be on the road by 10:00 am,” Ric told me the night before our five and half month stay at the beach trailer park ended.  “There are high wind warnings for tomorrow afternoon, so we should be at our destination before they hit.” I had pushed myself the night before to get […]

Read More

Systemic Describes ME/CFS

Systemic best describes the characteristic of ME/CFS:  the exhaustion, like a lead weight, hits muscles, organs, and brain creating an overall resistance to movement.  Physical energy is engaged in a battle against spirit. Two weeks ago, I attended wedding preparations and celebrations, babysat my five-year-old granddaughter, and felt like I was finally progressing beyond this […]

Read More

Illness, Life’s Intruder

Before illness (ME/CFS), I had my life lined up, like a shopkeeper perfectly aligning her shelves, ready to get down to business.  One more course and I would be at the top pay scale, qualified to fill many shoes in the education field.  I had landed my dreamed-for job in Special Education, and was starting […]

Read More

When Caregivers Need Caring

Up until six weeks ago, my husband was my full-time caregiver.  A heart attack turned that upside down in a hurry, but with the help of friends and then hired assistance we have figured it out, and life goes on.  Except that… …expectations have changed; …communication has broken down; (Image from:  robliano.wordpress.com) …we are both […]

Read More

Tale of Kidnapping Inspirational

Amanda Lindhout, along with Sara Corbett, has written a riveting tale of her kidnapping and captivity during a trip to Somalia. I first became interested in Lindhout’s story when I caught a glimpse of an interview on a television program.  How, I wondered, does someone survive such a horrendous experience? A House in the Sky, […]

Read More

Tribulations

Preoccupation with my own woes blinded me to my husband’s suffering, which culminated in a heart attack on Saturday night.  We are shell-shocked. “That’s what happens to caregivers,” a callous nurse commented.  Am I supposed to feel guilty? Unable to either drive myself, or push my own wheelchair, I am reliant on the goodwill of […]

Read More