Alina’s Dream

June 17, 2022.Reading time 5 minutes.

“Will you please write my story, V.J.?” fourteen-year-old Alina asked me recently. She and her family have now been living with Ric and I a month. Alina is a striking young woman, calm and poised, and over the past month, I have come to appreciate the strength of her determination. We talked about interests the […]

Pep Talk

March 12, 2018.Reading time 4 minutes.

I’ve faced worse, I told myself when the diagnosis came; I’ll get through this too. And I believe it. Whatever it takes, I am committed. That doesn’t mean that the struggle is lessened in any way. The struggle is very real. It begins with knowing self. I’ve never been one to accept anything at face value. […]

Systemic Describes ME/CFS

September 22, 2017.Reading time 3 minutes.

Systemic best describes the characteristic of ME/CFS: the exhaustion, like a lead weight, hits muscles, organs, and brain creating an overall resistance to movement. Physical energy is engaged in a battle against spirit. Two weeks ago, I attended wedding preparations and celebrations, babysat my five-year-old granddaughter, and felt like I was finally progressing beyond this […]