Pep Talk

I’ve faced worse, I told myself when the diagnosis came; I’ll get through this too. And I believe it.   Whatever it takes, I am committed. That doesn’t mean that the struggle is lessened in any way.  The struggle is very real. It begins with knowing self.  I’ve never been one to accept anything at face value. […]

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Backlash

Myalgic encephalomyelitis (ME) manifests in many ways, often different from one person to the next, and even in one individual the symptoms can fluctuate, however; the one constant is PEM or post-exertional malaise.  PEM hit me two days after we returned from Sedona. I had been doing so well.  My legs, which usually give me […]

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Systemic Describes ME/CFS

Systemic best describes the characteristic of ME/CFS:  the exhaustion, like a lead weight, hits muscles, organs, and brain creating an overall resistance to movement.  Physical energy is engaged in a battle against spirit. Two weeks ago, I attended wedding preparations and celebrations, babysat my five-year-old granddaughter, and felt like I was finally progressing beyond this […]

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