Self-Isolating

“It’s like COVID all over again,” my daughter remarks. She’s right, of course, except I’m the only one isolating. After two rounds of bugs and an infection, I have chosen to stay away from others in an attempt to give my immune system a break. Besides, I have a procedure in ten days for which […]

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Chronic Illness vs Depression

“How do I know if I am depressed or it’s just the exhaustion of ME?” I asked my therapist in the early days of being bedridden with Myalgic Encephalomyelitis. “It’s simple,” she answered. “With depression, you lose interest in the things you usually love, so you don’t bother. With chronic illness, you want to engage, […]

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To Shift or Not to Shift

During our last visit, the doctor prescribed a new medication to manage migraines. We discussed not starting it until I was cleared of other issues that I was facing at the time. Turned out, I was able to start the medication on Christmas day. Fast forward a few days and I notice no signs of […]

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Inevitable

Still consumed with tests and medical appointments. Thought we had come to resolution on one issue, but the treatment didn’t work, and so we start again with another biopsy. Likely as frustrated as me, the doctor is now pointing fingers at other medications as being the culprit. Trouble is that I need those treatments to […]

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A Change of Venue

The biopsy was July 12th. My follow up appointment was not until September 4th. Having been through many of these, we concluded that there was no diagnosis that would disrupt travel, so went ahead and planned. We would fly out on the 7th. After seeing the specialist. Turns out there was a concern with the […]

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Packing

We’ve decided, after five years of being homebodies, to try travelling again. He’s making reservations, while I make to-do lists and try to decide what to pack. Excited by the possibility, he draws up ambitious itineraries, and I’m feeling reality close in. What won’t fit into any suitcase, I gently remind him, is the promise […]

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Prolonged Illness and Isolation

“Isolation is seldom listed as a symptom of chronic disease, but it certainly is a component.  The need for human interaction is very real, in fact, psychologically, I would say it is essential. Making a conscientious effort to reach out to others, balancing social activity with limited energy, and valuing myself enough to keep the […]

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Santa’s on His Way?

I created this piece a week ago. Weather was turning, and I got inspired to make lists, and then, wham….Ric and I tested positive for COVID. Damn! The doctor immediately prescribed Paxlovid with a warning that it would cause a terrible taste in my mouth (it does) and likely affect my gastrointestinal system. No joke […]

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Not a Chance, Lady

I decided to ignore the tugging signs and drive the car the short distance to the river. The day was overcast, so I reasoned that the light would not bother my eyes. Some things are not meant to be. Lifting my camera to shoot the heron lingering in the shallows, I realized that my right […]

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Re-emergence

Hard to pinpoint when it all started. Was it the night before, when I pushed myself to finish that knitting project even though my eyes were so blurry that I had to feel my way through? Was it the day before, when I noticed that my breathing was compromised? I do know that I awoke […]

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