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A Glimmer of Hope

“Was I right about the doctor?”  the middle-aged receptionist asked cheerfully as I emerged from the examination room and waited for my next appointment. “He’s very good,” I agreed.  I had hesitated to see one more specialist after a history of dead ends trying to get a diagnosis for what […]

RV-Able: Tips for the Road

Travelling South in a forty-foot vehicle is not akin to driving in a car.  Apart from the obvious size difference, there are other factors to take into consideration. For one, the dashboard heater has a lot bigger job to do.  If you are like me, the idea of heading into […]

Dreams Compensate

In dreams, I walk, no concern for the distance.  I ride a bicycle, or drive a car.  I move with purpose and direction… …until lucidity snaps me back to reality and then I plummet into the despair of knowing these are no longer options for me. In dreams, I confront […]

Tired of Waiting

I’ve been making a conscientious effort to break free from the unhealthy patterns that hold me back in life:  an overly inflated sense of responsibility/martyr complex, lack of personal boundaries, and little self worth. While change is never easy, especially when it involves looking at one’s self objectively, the awareness has […]

Tough Stuff

Minutes after my first husband and I were settling into our honeymoon suite, I got a call from my father advising me that my oldest sister had gone from the wedding reception to emergency. “I think you better come,” he told me solemnly.  So we packed up and headed back. […]

“Are You Brother and Sister?”

“Are you guys brother and sister?”  the question came from our soon-to-be five-year-old granddaughter.  Dropped off by her mother for an overnight stay, we had a day of cousins and uncles and aunts, and of course, Grandma and Grandpa. I brushed off her comment with a:  “No, we’re married”, but […]

A Case for Noncompliance

I heard the ping of the text while I was in the doctor’s office – assumed it was a response from the message I had sent out earlier to my daughters – and chose to ignore it.  I did the same when my phone vibrated a few seconds later to […]

Measured by Costco

Living with ME/CFS is often a matter of trial and error – the line between what the body is capable of and overexertion is never quite definable, except in the aftermath.  Yesterday, I accompanied my daughter to Costco, which was teeming with cars and people.  We found a parking spot […]

Contemplating Wellness

“Four treatments should about do it,” the doctor advised while discussing approaches to tackling ME/CFS, which has kept me homebound for the past two years. “Once your body is stronger, we can tackle the Lyme disease.”  Wednesday marked the final of four IV Ozone/Ultra-violet light/Glutathione treatments.  At the beginning of […]

Tightrope Walking

While my husband remains in the Cardiac Surgery Recovery Unit (CSRU), I am struggling to maintain some sort of equilibrium so that my own health (ME/CFS) does not worsen.  It is a tightrope walk, for sure.  The day of surgery, I went to the hospital twice, both for extended periods […]