“Four treatments should about do it,” the doctor advised while discussing approaches to tackling ME/CFS, which has kept me homebound for the past two years. “Once your body is stronger, we can tackle the Lyme disease.” Wednesday marked the final of four IV Ozone/Ultra-violet light/Glutathione treatments. At the beginning of each visit, the patient is […]
While my husband remains in the Cardiac Surgery Recovery Unit (CSRU), I am struggling to maintain some sort of equilibrium so that my own health (ME/CFS) does not worsen. It is a tightrope walk, for sure. The day of surgery, I went to the hospital twice, both for extended periods of time. When I woke […]
Had my second ozone/UVH/Glutathione treatment yesterday. This time there was no surge of physical energy, in fact, I felt quite tired afterwards, although my heart tended to race most of the day, interrupting any attempts at rest. Of course, it could be the onrush of rage I feel at the fall out with my daughters, […]
“I’ve had this recurring dream in which we are on vacation and he leaves me – just walks away,” I tell my therapist. “I wake up in a panic, feeling abandoned.” “Oh dear,” she says. “I wonder if these dreams would change if he started looking after himself?” “Yes!” I exclaim, relieved. These are not […]
Preoccupation with my own woes blinded me to my husband’s suffering, which culminated in a heart attack on Saturday night. We are shell-shocked. “That’s what happens to caregivers,” a callous nurse commented. Am I supposed to feel guilty? Unable to either drive myself, or push my own wheelchair, I am reliant on the goodwill of […]
Having researched all the possible side effects and coming up empty handed – in fact there were few negatives for any part of the treatment – I began to suspect the detox. Another sleepless night and no improvement makes me think it has to be something, so I took a break today and stayed away […]
One of the last things my ex-husband did before becoming an ex, was to show up with a used motor home, unexpectedly. I won’t get into the details here, but suffice to say it was neither discussed in advance, nor a suitable vehicle for family outings. So, when I met my current husband and he […]
It has been two years now since the diagnosis of Myalgic Encephalomyelitis (ME) changed my life. The disease, recently renamed Systemic Exertion Intolerance Disorder (SEID), has also been known as Chronic Fatigue Syndrome, although the latter is really a misnomer. ME affects muscles, the spinal cord (nervous system), and the brain stem. I wrote about […]