“Dear Charlotte Perkins Gilman” Performed

Yours truly ventured out to an open mic, with the support of two of dear friends.   Despite how unwell I was feeling, my companions arranged for me to read my poems before I could retreat.  This was only my second visit to an open mic poetry session, and I decided to read a personal […]

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Still Loving My Doc

The challenge, when dealing with a chronic illness – in my case ME/CFS – is staying positive.  Momentary improvements in health are toppled by extreme crashes.  It’s like living in an eddy where, every once a while, the current quiets and it feels as if there might be an escape, and then the weather shifts […]

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Preparations Are Mighty

A forty-one foot Alfa See Ya sits in the driveway awaiting take off. Ric has had to get medical clearance after two heart attacks and triple bypass surgery in the spring.  He has also had to get special licensing to drive our new soon to be home. We have purchased a mobility scooter for yours […]

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Dreams Compensate

In dreams, I walk, no concern for the distance.  I ride a bicycle, or drive a car.  I move with purpose and direction… …until lucidity snaps me back to reality and then I plummet into the despair of knowing these are no longer options for me. In dreams, I confront life’s issues, face my foes, […]

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Inaccessible

Spas are meant to be luxurious: relaxation sublime.   My daughter planned on it when she booked us into a top-rated facility for a morning of pampering. My daughter doesn’t have mobility issues.  It wasn’t her inner bitch that threatened to spoil the day. Should have known there’d be a problem by the absence of handicapped […]

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Horizontal Champion

Sleeping in was a sin in my father’s eyes.  Even as a teenager, no matter how late we’d been out the night before, if we weren’t up with the sun, Dad would treat us to an icy face wash. The early bird catches the worm! Laziness was not tolerated either.  If we were ever caught […]

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Doctor Love

I’m in love with my doctor. I realized it this afternoon, when having just returned from a quarterly visit; I opened my email to find three messages from his office, all with attachments outlining the new course of treatment he has assigned me. It’s not that I didn’t know the emails were coming – handouts […]

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Fear or Legacy?

Originally posted on One Woman's Quest:
? I fear illness.  I grew up in a household where dis-ease was the norm.  My mother had her first dance with death as a child, then suffered a broken back in her late thirties, followed by three bouts of cancer.  In her elder years, she lives with…

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Time To Press Reset

Even when illness is chronic there is a tendency to look for signs and hope of healing.  It catches me every time : the false hope that I may have turned a corner. Undeniably, there is progress.  Last night I was able to bathe alone without worry of falling or passing out.  Last year, I […]

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Trial Run

Eight days in – each day a new adventure. Our two year plan to retirement includes winding down my husband’s business, selling off all our home and furnishings, and hitting the road in the 40′ RV we just purchased.  Never having owned an RV before, we thought it would be a good idea to park […]

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