ME Awareness May 12th

It is just past noon and I am still in bed.  It is doubtful that I will be able to do much else today. Yesterday, I went for lunch with my daughter, her mother-in-law and the baby, an occasion for which I rested up.  One hour we were gone, and then I came home for […]

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Dreams: A Vehicle for Self-Reflection

I’m waiting in the RV for my husband to finish shopping and drive us away. This is how a recent dream begins.  For over thirty years now, I have been recording and working with my dreams as a means to personal growth.  Often, where the dream takes place establishes context.  For me, currently disabled and […]

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“Dear Charlotte Perkins Gilman” Performed

Yours truly ventured out to an open mic, with the support of two of dear friends.   Despite how unwell I was feeling, my companions arranged for me to read my poems before I could retreat.  This was only my second visit to an open mic poetry session, and I decided to read a personal […]

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Still Loving My Doc

The challenge, when dealing with a chronic illness – in my case ME/CFS – is staying positive.  Momentary improvements in health are toppled by extreme crashes.  It’s like living in an eddy where, every once a while, the current quiets and it feels as if there might be an escape, and then the weather shifts […]

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Illness and Isolation

Prolonged illness almost always equates to isolation. Initially, kindness reveals itself through visits from friends and coworkers, meals dropped off, and many offers to help in any way.  Not yet adjusted to my rapidly changing situation, I was overwhelmed and somewhat embarrassed by such an outpouring, having always considered myself strong and independent. Perhaps, I […]

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Depression On Board

Depression rides along with chronic illness, not as a cause, but as a response. The limitations of this disease (ME/CFS) are not easily defined, yet, if pushed, will result in undeniable consequences.  You would think that after three years, I would know this, and yet, I continually fall into patterns of denial. We travelled 3,000 […]

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Body Talks

Listen to your body. Glib advice, especially if ignoring the body is habitual, and compliance is not listed as  a character trait. What would my body have to say, I wonder. My legs, stiff and inflexible, lumbering along like Frankenstein; are they telling me to put them up, resign myself to rest? My arms, heavy […]

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RV-Able: Home Again

If there was a reset button that automatically settled us back into our home lives, I would tell you that my husband and I just returned from a great adventure, unsurpassed by Aladdin and Jasmine’s magical carpet ride, however; both would be fictitious tales. We did find adventure, and laughter, and release from day-to-day stresses, […]

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Preparations Are Mighty

A forty-one foot Alfa See Ya sits in the driveway awaiting take off. Ric has had to get medical clearance after two heart attacks and triple bypass surgery in the spring.  He has also had to get special licensing to drive our new soon to be home. We have purchased a mobility scooter for yours […]

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Dreams Compensate

In dreams, I walk, no concern for the distance.  I ride a bicycle, or drive a car.  I move with purpose and direction… …until lucidity snaps me back to reality and then I plummet into the despair of knowing these are no longer options for me. In dreams, I confront life’s issues, face my foes, […]

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