The morning drizzle gave way to sunshine by noon and even though I’ve been tired today, I decide to take advantage of the clearing before retiring for the evening. I grab my camera and go in search of worthy images, but my legs are useless today, so I decide to sit instead, on a picnic […]
“I had lunch with some of your old colleagues yesterday and we were talking about you.” Never a good start to a conversation when your relationship to the mentioned parties ended the day you stopped working. “Oh, who?” The people mentioned are acquaintances, only one actually worked with me and it was before ME/CFS struck. […]
Systemic best describes the characteristic of ME/CFS: the exhaustion, like a lead weight, hits muscles, organs, and brain creating an overall resistance to movement. Physical energy is engaged in a battle against spirit. Two weeks ago, I attended wedding preparations and celebrations, babysat my five-year-old granddaughter, and felt like I was finally progressing beyond this […]
To-do list: write publish a blog post shower and dress strip the bed and remake vacuum and dust bedroom put away groceries from yesterday prep veggies for cooking make vegetable curry make red lentil kale soup make spicy tomato chick pea soup put away clothes from laundry Reality: slept late wrote and published blog post […]
Frankenstein legs, I call them, these long, slender appendages once a treasured asset, now stiff and unpredictable. Hunchbacked is my stance thanks to weakened back muscles. Cruella de Vil has nothing on me, my formerly auburn waves salt and pepper with a shock of white at the front. And when I speak there is hesitation […]
“Was I right about the doctor?” the middle-aged receptionist asked cheerfully as I emerged from the examination room and waited for my next appointment. “He’s very good,” I agreed. I had hesitated to see one more specialist after a history of dead ends trying to get a diagnosis for what was clearly something wrong with […]
Pain. I push against it. Challenge it, like a warrior intent on proving that I am indestructible, unwilling to flinch. If I ignore it, I tell myself, then it will cease to have power over me. Except, bit by bit it gnaws at my edges, tearing me down and just as I’m about to succumb […]
Wedged between one satisfactorily completed task and an overload of unfinished chores, I am a mess. We have decided to sell the house, and on the advice of stagers, are tearing everything apart, sorting into three piles: garbage, Goodwill, and keep/store. Purging, we are discovering, is exhausting. In order to do some touch up paint […]
“Grandma, when will you be better?” It is 5:00 on a school morning, and I am sitting at my granddaughter’s bedside nursing her through a sore tummy. “Not sure, Honey.” “Oh,” she shrugs. She is four and has never known me any other way. Later, we snuggle up and watch Moana. “You are just like […]
It is just past noon and I am still in bed. It is doubtful that I will be able to do much else today. Yesterday, I went for lunch with my daughter, her mother-in-law and the baby, an occasion for which I rested up. One hour we were gone, and then I came home for […]