Non-Compliance

If I listen to my body, I will lose hope. I will lie down, and never get up again. I am sticking to non-compliance, and hitching my hope to will. Mine and God’s. …as soon as I can get out of this bed… (On Wednesdays, I borrow from old writings – journals and blog posts. […]

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Adjusting Focus

Sometimes my focus is off. Like in the photo above – I thought I was capturing the body of water beyond, but in reality I only managed to get the fronds and a bit of fence. I’m still sick. I’ve stopped counting the days, but two bouts of antibiotics and many weeks later, I am […]

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Something to Love

I met a woman once, so debilitated by disease that my impulse was to recoil. Then I remembered the words of one of my teachers: “There is something to love about everyone”, and I checked myself, and realized that this woman must have an incredibly strong will to live. I told her so, and noted […]

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Don’t Take It Personally

Spurred on by my mother, I left home at the age of seventeen. It was the right thing for all involved, but when my parents replaced me with two cats, I couldn’t help but feel slighted: I’m deadly allergic to cats. When my mother-in-law spiked a meal with milk, hoping to prove that food allergies […]

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Life Takes A Turn

Life, like the weather, has taken a turn. No answers at the moment, but I am once again confined to bed rest. Restorative rest, is what the doctor has ordered. Limited screen time, hired help to run the house, no outings. I have a few posts pre-scheduled on my poetry site, and will visit when […]

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And the Winner Is…

What I didn’t tell you in my last post is that we put an offer on Option #1 immediately after viewing it.  It has everything we want and more.  We had driven to this community and looked at houses before, but they sell fast, so when we found out this one was sold conditional on […]

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Brief Connections

The morning drizzle gave way to sunshine by noon and even though I’ve been tired today, I decide to take advantage of the clearing before retiring for the evening.  I grab my camera and go in search of worthy images, but my legs are useless today,  so I decide to sit instead, on a picnic […]

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RV-Able: A Question of Wellness

“I had lunch with some of your old colleagues yesterday and we were talking about you.” Never a good start to a conversation when your relationship to the mentioned parties ended the day you stopped working. “Oh, who?” The people mentioned are acquaintances, only one actually worked with me and it was before ME/CFS struck. […]

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Systemic Describes ME/CFS

Systemic best describes the characteristic of ME/CFS:  the exhaustion, like a lead weight, hits muscles, organs, and brain creating an overall resistance to movement.  Physical energy is engaged in a battle against spirit. Two weeks ago, I attended wedding preparations and celebrations, babysat my five-year-old granddaughter, and felt like I was finally progressing beyond this […]

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ME/CFS and To-do Lists

To-do list: write publish a blog post shower and dress strip the bed and remake vacuum and dust bedroom put away groceries from yesterday prep veggies for cooking make vegetable curry make red lentil kale soup make spicy tomato chick pea soup put away clothes from laundry Reality: slept late wrote and published blog post […]

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