Confessions of Losses and Gains

Illness comes at a cost, yet even as the losses add up, there are gains. With the onset of summer, I recall leisurely hours spent golfing with my husband, or friends – a pastime we so loved.  My clubs now take up residence elsewhere, these muscles unfit for the exertion required. My tennis racquet sits […]

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Baby Turns Two

Two years ago my husband was just released from the hospital following triple bypass surgery, my daughter’s mother-in-law fell down their stairs resulting in a concussion, and our third granddaughter was born.  It was a chaotic time. Now, I am happy to report, all are well, and the little one is more than thriving.  We […]

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Brief Connections

The morning drizzle gave way to sunshine by noon and even though I’ve been tired today, I decide to take advantage of the clearing before retiring for the evening.  I grab my camera and go in search of worthy images, but my legs are useless today,  so I decide to sit instead, on a picnic […]

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Backlash

Myalgic encephalomyelitis (ME) manifests in many ways, often different from one person to the next, and even in one individual the symptoms can fluctuate, however; the one constant is PEM or post-exertional malaise.  PEM hit me two days after we returned from Sedona. I had been doing so well.  My legs, which usually give me […]

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Where’s Maude When You Need Her?

Following a comment I made on Twitter about how patients with ME/CFS are dismissed when presenting at Emergency, a fellow twitterer sent me this link.  Leave it to Golden Girl Maude to articulate so clearly the sentiment of so many who have wrestled with the medical community looking for answers. No one can lecture like […]

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The Spirit of Wild Horses

We’ve come back to Coon’s Bluff in hopes of seeing the wild horses.  The day is crystal blue, without a cloud in the sky.  My heart is heavy. I woke up in the middle of the night, with the lines of a poem running through my head.  Without turning on the light, I reached for […]

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Blue Moon Blues

My mother and I sat back to back on the tiny step stool used to help patients scoot up on examining tables.  My sister laid in the bed beside us, disoriented and fearful.  She’d tried to commit suicide again. The emergency ward was overflowing with people seeking attention, and the presence of several officers in […]

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