Backlash

Myalgic encephalomyelitis (ME) manifests in many ways, often different from one person to the next, and even in one individual the symptoms can fluctuate, however; the one constant is PEM or post-exertional malaise.  PEM hit me two days after we returned from Sedona. I had been doing so well.  My legs, which usually give me […]

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Where’s Maude When You Need Her?

Following a comment I made on Twitter about how patients with ME/CFS are dismissed when presenting at Emergency, a fellow twitterer sent me this link.  Leave it to Golden Girl Maude to articulate so clearly the sentiment of so many who have wrestled with the medical community looking for answers. No one can lecture like […]

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The Spirit of Wild Horses

We’ve come back to Coon’s Bluff in hopes of seeing the wild horses.  The day is crystal blue, without a cloud in the sky.  My heart is heavy. I woke up in the middle of the night, with the lines of a poem running through my head.  Without turning on the light, I reached for […]

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Blue Moon Blues

My mother and I sat back to back on the tiny step stool used to help patients scoot up on examining tables.  My sister laid in the bed beside us, disoriented and fearful.  She’d tried to commit suicide again. The emergency ward was overflowing with people seeking attention, and the presence of several officers in […]

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M.E. and the Brain

My brain does not function properly.  I’ve written before about the difficulty in retrieving words and processing information, all symptoms of Myalgic Encephalomyelitis.  Another bi-product of inflammation on the brain, or perhaps it’s the nervous system, is that my mind locks on something and won’t let it go. Typically, during the day, I can distract […]

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The ‘C’ Word

“I sat in the waiting room, naked from the waist up save for the hospital green awkwardly tied in front.  This was a call back: not the kind you pray for after an audition. “In nine out of ten times, it’s nothing,” the voice had said over the phone.  She added they wanted to do […]

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