When illness struck our household it knocked over our bucket list, spilling much of the content into the drain. We were like bystanders at a train wreck: watching our lives spiral out of control, desperately trying to sift through the rubble to find signs of survival. Depression, anger, and grief were just some of the […]
“You’re the only help I have right now, Mom! I just feel like I’m not a priority for you.” “When you spend all your energy on the kids, I feel as if there is never any left over for me. I just get the dregs.” “It would be really nice if you could spend some […]
Minutes after my first husband and I were settling into our honeymoon suite, I got a call from my father advising me that my oldest sister had gone from the wedding reception to emergency. “I think you better come,” he told me solemnly. So we packed up and headed back. I had known that my […]
If you’ve ever wondered what living with a disability feels like, imagine this: Judgment is your constant companion. Family, friends, and even total strangers will suddenly feel entitled to express opinions about your condition, lack of trying, mental attitude, the latest trends in healing, and so on. You may be berated for using a handicap […]
A week after my husband completed thirty-five rounds of radiation for Stage III Prostate cancer, and a year to the date that I learned surgery to remove cancerous tissues from my breast was successful, Ric fell down a flight of steps rupturing his quad tendon. Ten weeks after surgery, he would fall again, causing further […]
Living with ME/CFS is often a matter of trial and error – the line between what the body is capable of and overexertion is never quite definable, except in the aftermath. Yesterday, I accompanied my daughter to Costco, which was teeming with cars and people. We found a parking spot close to the entrance, and […]
Before illness (ME/CFS), I had my life lined up, like a shopkeeper perfectly aligning her shelves, ready to get down to business. One more course and I would be at the top pay scale, qualified to fill many shoes in the education field. I had landed my dreamed-for job in Special Education, and was starting […]
Hesitantly, I turn the key in the lock and push the door ajar. A waft of warm, stale air accosts me. “Hello?” I’d been told there might not be a response. Something is resting against the door, so I push harder to let myself in. The beam from the light of the open doorway is […]
I dream that Ric has removed our dining table. There has been no discussion, no explanation, just an empty space to mark his actions. Even in my dreams, I am asking questions: Is he having it repaired, or replacing it? Surely, not replacing, I think, as the table was his mother’s. I conclude that all […]
I wasn’t raised to be on disability. In fact, my military trained father would never allow us to sleep in – up by 5 a.m. on holidays or we’d miss the day – and constantly drilled into us that “idleness was the devil’s playground.” There was no lying around, watching soap operas or movies during […]