Growing with gratitude for life's challenges
ME/CFS is a mean mistress, whose sole purpose is to keep me down. She is a dominatrix thriving on my submission, wielding her whip with heartlessness, and when she tires of the lashes – has me wincing in pain – she tosses the whip in my direction, tauntingly daring me to defend myself, knowing full well that […]
Read More“How are you?” my friend asked me the other morning – an innocuous enough question, if the recipient is not suffering from chronic illness. Apart from the odd text here and there, I hadn’t talked to this friend for months, so I answered a pat: “Better.” I had really called her because I knew she […]
Read MoreAssuming my faculties have regained some semblance of functioning, I will drive again. I don’t anticipate the first run will be without incidence – traffic is known to snarl, and accidents are a regular occurrence – but I have faith in my ability to respond appropriately. I’m reminded of my first car and that one […]
Read MoreI am not always in possession of my own faculties and the resulting anger lashes out, mostly at my husband, whom I hope recognizes it is seldom personal. I hate myself in these moments – not all of me – just the malfunctioning parts. It happens when I overexert myself. Systemic Exertion Intolerance Disease is the new […]
Read MoreWhen illness struck our household it knocked over our bucket list, spilling much of the content into the drain. We were like bystanders at a train wreck: watching our lives spiral out of control, desperately trying to sift through the rubble to find signs of survival. Depression, anger, and grief were just some of the […]
Read More“You’re the only help I have right now, Mom! I just feel like I’m not a priority for you.” “When you spend all your energy on the kids, I feel as if there is never any left over for me. I just get the dregs.” “It would be really nice if you could spend some […]
Read MoreThis pedestal of responsibility has elevated me, out of reach, out of touch, lumps together children, mate, mother sister… Caregiver extraordinaire, present overcrowded by obligations, am unwell, off topic, fed up, surely… I am other abled, have room for more, non martyr related, hesitant to plan, my purpose for being so intricately tuned to the […]
Read MoreMinutes after my first husband and I were settling into our honeymoon suite, I got a call from my father advising me that my oldest sister had gone from the wedding reception to emergency. “I think you better come,” he told me solemnly. So we packed up and headed back. I had known that my […]
Read MoreIf you’ve ever wondered what living with a disability feels like, imagine this: Judgment is your constant companion. Family, friends, and even total strangers will suddenly feel entitled to express opinions about your condition, lack of trying, mental attitude, the latest trends in healing, and so on. You may be berated for using a handicap […]
Read MoreA week after my husband completed thirty-five rounds of radiation for Stage III Prostate cancer, and a year to the date that I learned surgery to remove cancerous tissues from my breast was successful, Ric fell down a flight of steps rupturing his quad tendon. Ten weeks after surgery, he would fall again, causing further […]
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One Woman's Quest II 