Living with ME/CFS is often a matter of trial and error – the line between what the body is capable of and overexertion is never quite definable, except in the aftermath. Yesterday, I accompanied my daughter to Costco, which was teeming with cars and people. We found a parking spot close to the entrance, and […]
Before illness (ME/CFS), I had my life lined up, like a shopkeeper perfectly aligning her shelves, ready to get down to business. One more course and I would be at the top pay scale, qualified to fill many shoes in the education field. I had landed my dreamed-for job in Special Education, and was starting […]
Hesitantly, I turn the key in the lock and push the door ajar. A waft of warm, stale air accosts me. “Hello?” I’d been told there might not be a response. Something is resting against the door, so I push harder to let myself in. The beam from the light of the open doorway is […]
I dream that Ric has removed our dining table. There has been no discussion, no explanation, just an empty space to mark his actions. Even in my dreams, I am asking questions: Is he having it repaired, or replacing it? Surely, not replacing, I think, as the table was his mother’s. I conclude that all […]
I wasn’t raised to be on disability. In fact, my military trained father would never allow us to sleep in – up by 5 a.m. on holidays or we’d miss the day – and constantly drilled into us that “idleness was the devil’s playground.” There was no lying around, watching soap operas or movies during […]
“Four treatments should about do it,” the doctor advised while discussing approaches to tackling ME/CFS, which has kept me homebound for the past two years. “Once your body is stronger, we can tackle the Lyme disease.” Wednesday marked the final of four IV Ozone/Ultra-violet light/Glutathione treatments. At the beginning of each visit, the patient is […]
Had my third Ozonotherapy last week, and apart from feeling flushed and slightly dizzy afterwards (I then realized I was likely dehydrated) I have felt increasingly stronger. “Or is it that you have a new granddaughter?” my husband likes to play Devil’s Advocate. Having a new grandchild is definitely an energy boost – the motivation […]
“How will we cope when you get out of hospital?” I asked my husband during his week-long stay on the Cardiac ward awaiting surgery. “Let me figure that out,” he promised. “There’s plenty of time to worry about that.” I asked him again just prior to surgery, picturing a frail man returning home, and me, […]
A single onion, its papery crisp coating still intact, sits on a small cutting board, signalling intent. Beside it, a sharp-edged knife, and an unopened can of salmon. It is the salmon can that has turned this scenario from an action shot to a still-life. I had planned to have it for dinner last night […]
While my husband remains in the Cardiac Surgery Recovery Unit (CSRU), I am struggling to maintain some sort of equilibrium so that my own health (ME/CFS) does not worsen. It is a tightrope walk, for sure. The day of surgery, I went to the hospital twice, both for extended periods of time. When I woke […]