Measured by Costco

Living with ME/CFS is often a matter of trial and error – the line between what the body is capable of and overexertion is never quite definable, except in the aftermath. Yesterday, I accompanied my daughter to Costco, which was teeming with cars and people.  We found a parking spot close to the entrance, and […]

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Illness, Life’s Intruder

Before illness (ME/CFS), I had my life lined up, like a shopkeeper perfectly aligning her shelves, ready to get down to business.  One more course and I would be at the top pay scale, qualified to fill many shoes in the education field.  I had landed my dreamed-for job in Special Education, and was starting […]

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First Encounter with ME/CFS

Hesitantly, I turn the key in the lock and push the door ajar.  A waft of warm, stale air accosts me. “Hello?”  I’d been told there might not be a response. Something is resting against the door, so I push harder to let myself in.  The beam from the light of the open doorway is […]

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Table Talk – A Dream Guide

I dream that Ric has removed our dining table.  There has been no discussion, no explanation, just an empty space to mark his actions. Even in my dreams, I am asking questions:  Is he having it repaired, or replacing it?  Surely, not replacing, I think, as the table was his mother’s.  I conclude that all […]

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Fake It Till I Make It, Not!

I wasn’t raised to be on disability.  In fact, my military trained father would never allow us to sleep in – up by 5 a.m. on holidays or we’d miss the day – and constantly drilled into us that “idleness was the devil’s playground.” There was no lying around, watching soap operas or movies during […]

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Contemplating Wellness

“Four treatments should about do it,” the doctor advised while discussing approaches to tackling ME/CFS, which has kept me homebound for the past two years. “Once your body is stronger, we can tackle the Lyme disease.” Wednesday marked the final of four IV Ozone/Ultra-violet light/Glutathione treatments.  At the beginning of each visit, the patient is […]

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Things Are Looking Up

Had my third Ozonotherapy last week, and apart from feeling flushed and slightly dizzy afterwards (I then realized I was likely dehydrated) I have felt increasingly stronger. “Or is it that you have a new granddaughter?” my husband likes to play Devil’s Advocate. Having a new grandchild is definitely an energy boost – the motivation […]

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Homecoming Hullabaloo

“How will we cope when you get out of hospital?”  I asked my husband during his week-long stay on the Cardiac ward awaiting surgery. “Let me figure that out,” he promised.  “There’s plenty of time to worry about that.” I asked him again just prior to surgery, picturing a frail man returning home, and me, […]

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Salmon Intentions or Battle of the Can

A single onion, its papery crisp coating still intact, sits on a small cutting board, signalling intent.  Beside it, a sharp-edged knife, and an unopened can of salmon. It is the salmon can that has turned this scenario from an action shot to a still-life. I had planned to have it for dinner last night […]

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Tightrope Walking

While my husband remains in the Cardiac Surgery Recovery Unit (CSRU), I am struggling to maintain some sort of equilibrium so that my own health (ME/CFS) does not worsen.  It is a tightrope walk, for sure. The day of surgery, I went to the hospital twice, both for extended periods of time.  When I woke […]

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