Chronically Hopeful Award

Terri, at Reclaiming Hope, has nominated me for the Chronically Hopeful Award, created by Pamela from There is Always Hope. I am so inspired by Terri’s commitment to health and her no-nonsense, honest advice for coping with the ongoing struggle. Finding Terri here in the blogosphere has been a highlight of my experience and I […]

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And Then There Was Hope

Three years ago today, I dragged myself out of bed, and with the aid of my walker (and likely a wheelchair), I paid a visit to a local doctor/ practitioner of Functional Medicine. Getting out in those days was a huge ordeal, and typically entailed a backlash that would last weeks. I was that sick. […]

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Numbers and Chronic Illness

It’s been 5 years since illness knocked me off my feet. Tuesday, I visited the doctor with a list of 12 symptoms to discuss. She had 4 things to cover with me. We spent 1 hour and she took 2 samples, and set me up with 1 specialist and 3 more tests. She gave me […]

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Appearances

Testing social waters – that cherished state of interaction – prone to revealing too much have been homebound, studying life without a facilitator, now attempting to penetrate invisibility gathering the salvageable bits – minimal fragments of a once whole woman, reaching out, reconnecting, reception mixed much has passed me by – no amount of homework […]

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Confessions of Losses and Gains

Illness comes at a cost, yet even as the losses add up, there are gains. With the onset of summer, I recall leisurely hours spent golfing with my husband, or friends – a pastime we so loved.  My clubs now take up residence elsewhere, these muscles unfit for the exertion required. My tennis racquet sits […]

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Still Dreaming

Jen at Tripping Through Treacle has inspired me to rewrite my bucket list.  Instead of focusing on loss, I can rethink my aspirations.  I love it!  This is a perfect activity for Myalgic Encephalomyelitis awareness month. Actually, I feel like I’ve just had a bucket list year.   Thanks to my husband’s determination and constant willingness […]

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RV-Able: Where It All Began

Four years ago, I was diagnosed with Myalgic Encephalomyelitis, a disease which affects all systems in the body and landed me in bed, barely able to complete the simplest of tasks.  Fast forward two years later, and my problem-solving husband is looking for a way to give me some life back.  This post from February […]

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“Beautiful Affliction” Resonates

The riddle closes in.  I can hear its heavy footsteps, echoing in my ears.  The dark brings out that which the day hides. (Excerpt from Beautiful Affliction) Lene Fogelberg knows what it is like to live with an undiagnosed medical condition and to be turned away time and again from doctors.  In Beautiful Affliction she […]

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“Dear Charlotte Perkins Gilman” Performed

Yours truly ventured out to an open mic, with the support of two of dear friends.   Despite how unwell I was feeling, my companions arranged for me to read my poems before I could retreat.  This was only my second visit to an open mic poetry session, and I decided to read a personal […]

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What Do You Want For Christmas?

“A Kinder Egg,” our four-year-old granddaughter wrote to Santa. “A kitten,” asked her cousin, aged five. My kids sent me lists, as per my request, and my husband created a wish list on Amazon – mostly things for our motor home. I have no idea what I want.  Truthfully, I have everything I need – […]

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