Travel Woes and Goes

Well we made it home, but our luggage continues to travel…apparently, it is lost in space. My body is grateful to be back in the comfort of our own home. Travelling with health and mobility issues takes its toll. This trip proved more challenging than we imagined, and it was wonderful at the same time. […]

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Chronically Hopeful Award

Terri, at Reclaiming Hope, has nominated me for the Chronically Hopeful Award, created by Pamela from There is Always Hope. I am so inspired by Terri’s commitment to health and her no-nonsense, honest advice for coping with the ongoing struggle. Finding Terri here in the blogosphere has been a highlight of my experience and I […]

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Appearances

Testing social waters – that cherished state of interaction – prone to revealing too much have been homebound, studying life without a facilitator, now attempting to penetrate invisibility gathering the salvageable bits – minimal fragments of a once whole woman, reaching out, reconnecting, reception mixed much has passed me by – no amount of homework […]

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Still Dreaming

Jen at Tripping Through Treacle has inspired me to rewrite my bucket list.  Instead of focusing on loss, I can rethink my aspirations.  I love it!  This is a perfect activity for Myalgic Encephalomyelitis awareness month. Actually, I feel like I’ve just had a bucket list year.   Thanks to my husband’s determination and constant willingness […]

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“Beautiful Affliction” Resonates

The riddle closes in.  I can hear its heavy footsteps, echoing in my ears.  The dark brings out that which the day hides. (Excerpt from Beautiful Affliction) Lene Fogelberg knows what it is like to live with an undiagnosed medical condition and to be turned away time and again from doctors.  In Beautiful Affliction she […]

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“Dear Charlotte Perkins Gilman” Performed

Yours truly ventured out to an open mic, with the support of two of dear friends.   Despite how unwell I was feeling, my companions arranged for me to read my poems before I could retreat.  This was only my second visit to an open mic poetry session, and I decided to read a personal […]

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A Bad Day

ME/CFS is a mean mistress, whose sole purpose is to keep me down.  She is a dominatrix thriving on my submission, wielding her whip with heartlessness, and when she tires of the lashes – has me wincing in pain – she tosses the whip in my direction, tauntingly daring me to defend myself, knowing full well that […]

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