Tired of the Same Old Endings

“I’ve started to write short stories again – something I haven’t done since I was a kid.” “How’s that going?” “It’s disturbing, actually; the endings are the same even after all these years.” “Like what?” “Me in a straitjacket, completely mad.” “Oh, I see!” As do I – there are never happy endings, just a […]

Read More

On Acceptance and Illness

“Grandma, when will you be better?” It is 5:00 on a school morning, and I am sitting at my granddaughter’s bedside nursing her through a sore tummy. “Not sure, Honey.” “Oh,” she shrugs.  She is four and has never known me any other way. Later, we snuggle up and watch Moana.  “You are just like […]

Read More

On the Anniversary of My Father’s Death

Dear Dad, We all gathered together last night at D’s and were reminiscing about your death.  It’s been ten years, and funny how we all remember it differently. I say ‘all’ but really there was just D and I, her two sons, and my middle daughter and family.  Our family has dwindled away to nothing.  […]

Read More

Doctor Love

I’m in love with my doctor. I realized it this afternoon, when having just returned from a quarterly visit; I opened my email to find three messages from his office, all with attachments outlining the new course of treatment he has assigned me. It’s not that I didn’t know the emails were coming – handouts […]

Read More

Time To Press Reset

Even when illness is chronic there is a tendency to look for signs and hope of healing.  It catches me every time : the false hope that I may have turned a corner. Undeniably, there is progress.  Last night I was able to bathe alone without worry of falling or passing out.  Last year, I […]

Read More

Cars and Faith

Assuming my faculties have regained some semblance of functioning, I will drive again.  I don’t anticipate the first run will be without incidence – traffic is known to snarl, and accidents are a regular occurrence – but I have faith in my ability to respond appropriately. I’m reminded of my first car and that one […]

Read More

Dear Younger Self, On Our Birthday

Saw a picture of you today – us, just approaching sixteen – and instantly recognized the awkwardness with which you carry yourself: the painful self-consciousness, never knowing quite where you fit in or even if you are good enough to be in the picture.  Since today is our birthday, I decided to dedicate this post […]

Read More

Measured by Costco

Living with ME/CFS is often a matter of trial and error – the line between what the body is capable of and overexertion is never quite definable, except in the aftermath. Yesterday, I accompanied my daughter to Costco, which was teeming with cars and people.  We found a parking spot close to the entrance, and […]

Read More

Dream Offerings: New Perspectives

Dear Friend, I saw you in my dream; you were across the street and I caught myself hesitating – should I wave, acknowledge you, or keep on going?  Then you headed towards me, crossing what is now more a river than a street, there is so much water that has passed between us.  You gave […]

Read More

Illness, Life’s Intruder

Before illness (ME/CFS), I had my life lined up, like a shopkeeper perfectly aligning her shelves, ready to get down to business.  One more course and I would be at the top pay scale, qualified to fill many shoes in the education field.  I had landed my dreamed-for job in Special Education, and was starting […]

Read More