Inevitable

Still consumed with tests and medical appointments. Thought we had come to resolution on one issue, but the treatment didn’t work, and so we start again with another biopsy. Likely as frustrated as me, the doctor is now pointing fingers at other medications as being the culprit. Trouble is that I need those treatments to […]

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A Rocky Path

When health takes a hit, the road ahead becomes littered with unknowns. After months of waiting, I finally got in to see a neurologist. Actually, the call came on the very day I was about to tell my doctor to cancel the referral. For ten years I have lived with Myalgic Encephalomyelitis. Diagnosed, that is. […]

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Chronically Hopeful Award

Terri, at Reclaiming Hope, has nominated me for the Chronically Hopeful Award, created by Pamela from There is Always Hope. I am so inspired by Terri’s commitment to health and her no-nonsense, honest advice for coping with the ongoing struggle. Finding Terri here in the blogosphere has been a highlight of my experience and I […]

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Please Watch “Unrest”

Just finished watching Jennifer Brea’s award-winning documentary on ME/CFS entitled, Unrest, and so many thoughts are racing through my mind.  This is an important film, not just for the millions missing because of this disease and their loved ones; it should be required viewing for all who work in the field of medicine, and those […]

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Sufficiency

My living room has beautiful big picture windows facing two directions, allotting me a full view of the neighbour’s front gardens to the north, and the constant comings and goings  on the  street in front of the house.  Lying on the couch with my morning cup of tea is how I like to greet the […]

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Systemic Describes ME/CFS

Systemic best describes the characteristic of ME/CFS:  the exhaustion, like a lead weight, hits muscles, organs, and brain creating an overall resistance to movement.  Physical energy is engaged in a battle against spirit. Two weeks ago, I attended wedding preparations and celebrations, babysat my five-year-old granddaughter, and felt like I was finally progressing beyond this […]

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Armed with Info

The floor reached out for me, pulling me down with alarming force.  I fought to remain upright, waves of nausea weakening my resolve.  One hand flew to my brow – now a pool of sweat – while the other searched for the phone. I’m calling 9-1-1, I texted my husband. “Stay with us, V.J.!”  the […]

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Staging Challenges

Wedged between one satisfactorily completed task and an overload of unfinished chores, I am a mess. We have decided to sell the house, and on the advice of stagers, are tearing everything apart, sorting into three piles:  garbage, Goodwill, and keep/store.  Purging, we are discovering, is exhausting. In order to do some touch up paint […]

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