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M.E. and the Brain

My brain does not function properly.  I’ve written before about the difficulty in retrieving words and processing information, all symptoms of Myalgic Encephalomyelitis.  Another bi-product of inflammation on the brain, or perhaps it’s the nervous system, is that my mind locks on something and won’t let it go. Typically, during […]

RV-Able: Down Time

Hubby and I just woke up after a twelve hour sleep.  Unheard of for him, a blessing for me.  Both of us were beyond tired yesterday. The weather here is only five degrees celsius, so we slept with our mattress heaters on and hunkered in under the covers. Cozy. This […]

Please Watch “Unrest”

Just finished watching Jennifer Brea’s award-winning documentary on ME/CFS entitled, Unrest, and so many thoughts are racing through my mind.  This is an important film, not just for the millions missing because of this disease and their loved ones; it should be required viewing for all who work in the […]

Sufficiency

My living room has beautiful big picture windows facing two directions, allotting me a full view of the neighbour’s front gardens to the north, and the constant comings and goings  on the  street in front of the house.  Lying on the couch with my morning cup of tea is how […]

Systemic Describes ME/CFS

Systemic best describes the characteristic of ME/CFS:  the exhaustion, like a lead weight, hits muscles, organs, and brain creating an overall resistance to movement.  Physical energy is engaged in a battle against spirit. Two weeks ago, I attended wedding preparations and celebrations, babysat my five-year-old granddaughter, and felt like I […]

Armed with Info

The floor reached out for me, pulling me down with alarming force.  I fought to remain upright, waves of nausea weakening my resolve.  One hand flew to my brow – now a pool of sweat – while the other searched for the phone. I’m calling 9-1-1, I texted my husband. […]

Staging Challenges

Wedged between one satisfactorily completed task and an overload of unfinished chores, I am a mess. We have decided to sell the house, and on the advice of stagers, are tearing everything apart, sorting into three piles:  garbage, Goodwill, and keep/store.  Purging, we are discovering, is exhausting. In order to […]

ME Awareness May 12th

It is just past noon and I am still in bed.  It is doubtful that I will be able to do much else today. Yesterday, I went for lunch with my daughter, her mother-in-law and the baby, an occasion for which I rested up.  One hour we were gone, and […]

Policy vs Need

“I can’t process your application with the information I’ve been given,” the woman on the phone is officious, likely hates her job, I theorize.  “Your doctor has only sent me four medical reports; there is not enough here to support an inability to work.” I might have guffawed at this.  […]