Chronically Hopeful Award

Terri, at Reclaiming Hope, has nominated me for the Chronically Hopeful Award, created by Pamela from There is Always Hope. I am so inspired by Terri’s commitment to health and her no-nonsense, honest advice for coping with the ongoing struggle. Finding Terri here in the blogosphere has been a highlight of my experience and I […]

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M.E. and the Brain

My brain does not function properly.  I’ve written before about the difficulty in retrieving words and processing information, all symptoms of Myalgic Encephalomyelitis.  Another bi-product of inflammation on the brain, or perhaps it’s the nervous system, is that my mind locks on something and won’t let it go. Typically, during the day, I can distract […]

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Please Watch “Unrest”

Just finished watching Jennifer Brea’s award-winning documentary on ME/CFS entitled, Unrest, and so many thoughts are racing through my mind.  This is an important film, not just for the millions missing because of this disease and their loved ones; it should be required viewing for all who work in the field of medicine, and those […]

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Sufficiency

My living room has beautiful big picture windows facing two directions, allotting me a full view of the neighbour’s front gardens to the north, and the constant comings and goings  on the  street in front of the house.  Lying on the couch with my morning cup of tea is how I like to greet the […]

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Systemic Describes ME/CFS

Systemic best describes the characteristic of ME/CFS:  the exhaustion, like a lead weight, hits muscles, organs, and brain creating an overall resistance to movement.  Physical energy is engaged in a battle against spirit. Two weeks ago, I attended wedding preparations and celebrations, babysat my five-year-old granddaughter, and felt like I was finally progressing beyond this […]

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Armed with Info

The floor reached out for me, pulling me down with alarming force.  I fought to remain upright, waves of nausea weakening my resolve.  One hand flew to my brow – now a pool of sweat – while the other searched for the phone. I’m calling 9-1-1, I texted my husband. “Stay with us, V.J.!”  the […]

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Staging Challenges

Wedged between one satisfactorily completed task and an overload of unfinished chores, I am a mess. We have decided to sell the house, and on the advice of stagers, are tearing everything apart, sorting into three piles:  garbage, Goodwill, and keep/store.  Purging, we are discovering, is exhausting. In order to do some touch up paint […]

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ME Awareness May 12th

It is just past noon and I am still in bed.  It is doubtful that I will be able to do much else today. Yesterday, I went for lunch with my daughter, her mother-in-law and the baby, an occasion for which I rested up.  One hour we were gone, and then I came home for […]

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Policy vs Need

“I can’t process your application with the information I’ve been given,” the woman on the phone is officious, likely hates her job, I theorize.  “Your doctor has only sent me four medical reports; there is not enough here to support an inability to work.” I might have guffawed at this.  “I can barely manage day-to-day […]

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“Dear Charlotte Perkins Gilman” Performed

Yours truly ventured out to an open mic, with the support of two of dear friends.   Despite how unwell I was feeling, my companions arranged for me to read my poems before I could retreat.  This was only my second visit to an open mic poetry session, and I decided to read a personal […]

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