Backlash

Myalgic encephalomyelitis (ME) manifests in many ways, often different from one person to the next, and even in one individual the symptoms can fluctuate, however; the one constant is PEM or post-exertional malaise.  PEM hit me two days after we returned from Sedona. I had been doing so well.  My legs, which usually give me […]

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Where’s Maude When You Need Her?

Following a comment I made on Twitter about how patients with ME/CFS are dismissed when presenting at Emergency, a fellow twitterer sent me this link.  Leave it to Golden Girl Maude to articulate so clearly the sentiment of so many who have wrestled with the medical community looking for answers. No one can lecture like […]

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M.E. and the Brain

My brain does not function properly.  I’ve written before about the difficulty in retrieving words and processing information, all symptoms of Myalgic Encephalomyelitis.  Another bi-product of inflammation on the brain, or perhaps it’s the nervous system, is that my mind locks on something and won’t let it go. Typically, during the day, I can distract […]

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RV-Able: Down Time

Hubby and I just woke up after a twelve hour sleep.  Unheard of for him, a blessing for me.  Both of us were beyond tired yesterday. The weather here is only five degrees celsius, so we slept with our mattress heaters on and hunkered in under the covers. Cozy. This place we are staying is […]

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Please Watch “Unrest”

Just finished watching Jennifer Brea’s award-winning documentary on ME/CFS entitled, Unrest, and so many thoughts are racing through my mind.  This is an important film, not just for the millions missing because of this disease and their loved ones; it should be required viewing for all who work in the field of medicine, and those […]

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Sufficiency

My living room has beautiful big picture windows facing two directions, allotting me a full view of the neighbour’s front gardens to the north, and the constant comings and goings  on the  street in front of the house.  Lying on the couch with my morning cup of tea is how I like to greet the […]

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