If I listen to my body, I will lose hope. I will lie down, and never get up again. I am sticking to non-compliance, and hitching my hope to will. Mine and God’s. …as soon as I can get out of this bed… (On Wednesdays, I borrow from old writings – journals and blog posts. […]
525: the number of displaced Ukrainians on my list needing hosts. 525 out of the 300,000 who have applied for refuge in Canada. I am one of a team of a dozen. 7 days ago I hit a wall. The pain just doesn’t want to subside. So now my team is -1. The numbers haunt […]
Ruled out: COVID, heart failure, cancer, and blood clots. Twelve hours in emergency, under intense scrutiny revealed no answers. Symptoms continue. You need “restorative rest” the ER doctor emphasized. “Hire help if you can.” I suspect this is just another stage in my journey with Myalgic Encephalomyelitis. The least amount of effort tires me, leaves […]
Three years ago today, I dragged myself out of bed, and with the aid of my walker (and likely a wheelchair), I paid a visit to a local doctor/ practitioner of Functional Medicine. Getting out in those days was a huge ordeal, and typically entailed a backlash that would last weeks. I was that sick. […]
It’s been 5 years since illness knocked me off my feet. Tuesday, I visited the doctor with a list of 12 symptoms to discuss. She had 4 things to cover with me. We spent 1 hour and she took 2 samples, and set me up with 1 specialist and 3 more tests. She gave me […]
Testing social waters – that cherished state of interaction – prone to revealing too much have been homebound, studying life without a facilitator, now attempting to penetrate invisibility gathering the salvageable bits – minimal fragments of a once whole woman, reaching out, reconnecting, reception mixed much has passed me by – no amount of homework […]
Jen at Tripping Through Treacle has inspired me to rewrite my bucket list. Instead of focusing on loss, I can rethink my aspirations. I love it! This is a perfect activity for Myalgic Encephalomyelitis awareness month. Actually, I feel like I’ve just had a bucket list year. Thanks to my husband’s determination and constant willingness […]
“You seem to be doing better; are you going back to work?” Returning to work after time off due to flu, is expected. There might be a day or so of feeling weak, but it’s soon forgotten as the body springs back into action. Recovery from a debilitating illness, however, takes time. There are, according […]