The buzzer on the dryer startles me and I jump up, eager to change over the wash, only to find I have forgotten to start the washer load. I feel a tug of annoyance at myself. I am not functioning well today. Have been awake since well before 4:00 a.m. and am wired with non-sleep. […]
Jen at Tripping Through Treacle has inspired me to rewrite my bucket list. Instead of focusing on loss, I can rethink my aspirations. I love it! This is a perfect activity for Myalgic Encephalomyelitis awareness month. Actually, I feel like I’ve just had a bucket list year. Thanks to my husband’s determination and constant willingness […]
Fear is insidious; it creeps into the psyche and buries itself deep without any conscious effort. It manifests in anxiety, stalls progress, and threatens to define its host. Today, I did something I haven’t done in well over four years; I went for a walk in the woods, unattended. I took my camera and my […]
“You seem to be doing better; are you going back to work?” Returning to work after time off due to flu, is expected. There might be a day or so of feeling weak, but it’s soon forgotten as the body springs back into action. Recovery from a debilitating illness, however, takes time. There are, according […]
I’ve faced worse, I told myself when the diagnosis came; I’ll get through this too. And I believe it. Whatever it takes, I am committed. That doesn’t mean that the struggle is lessened in any way. The struggle is very real. It begins with knowing self. I’ve never been one to accept anything at face value. […]
Two years ago, I was barely able to get out of bed. Two years ago, I wondered if life would ever get better, or if I was doomed to a future of isolation and deprivation. Words were the weapon I employed to battle my way out of the kind of depression that accompanies debilitating illness. […]
Before illness, I counted days and hours, not out of drudgery – I had stretched myself beyond normal limitations. Before illness, I wore responsibility like a hero and defined by work, prioritized tasks above well-being. Before illness, I joked about the disabled, lounging around, living the life of leisure, usurping the system. Before illness, I […]
The ‘misspent’ years of my youth were dedicated to sneaking into blues bars, underage, to catch the soulful music of Muddy Waters, Downchild Blues Band, and even B.B. King himself. I was hooked on blues, so the thought of visiting Memphis thrilled me. Beale Street was top of my list of ‘must sees’. To kick […]
“I had lunch with some of your old colleagues yesterday and we were talking about you.” Never a good start to a conversation when your relationship to the mentioned parties ended the day you stopped working. “Oh, who?” The people mentioned are acquaintances, only one actually worked with me and it was before ME/CFS struck. […]
My living room has beautiful big picture windows facing two directions, allotting me a full view of the neighbour’s front gardens to the north, and the constant comings and goings on the street in front of the house. Lying on the couch with my morning cup of tea is how I like to greet the […]