RV-Able: A Question of Wellness

“I had lunch with some of your old colleagues yesterday and we were talking about you.” Never a good start to a conversation when your relationship to the mentioned parties ended the day you stopped working. “Oh, who?” The people mentioned are acquaintances, only one actually worked with me and it was before ME/CFS struck. […]

Read More

Sufficiency

My living room has beautiful big picture windows facing two directions, allotting me a full view of the neighbour’s front gardens to the north, and the constant comings and goings  on the  street in front of the house.  Lying on the couch with my morning cup of tea is how I like to greet the […]

Read More

RV-Able: Creating a Home

Gone are the wooden window valances draped in heavy material of sage green and burnt orange.  Gone are the matching upholstered dining chairs and the butterfly table.  Gone is the small J-couch that once blocked the large picture windows on the passenger’s side of the coach.  We are renovating. Since July 31st, we have been […]

Read More

Distraught? Pause

Yesterday, I was ready to give up – on everything.  I was convinced that my husband’s distraction meant he didn’t love me and that our marriage was coming to an end.  I  panicked to think that we are planning to leave home and I will be cut off from family.  I convinced myself that I […]

Read More

What Does It Take To Belong?

We roll into our new neighbourhood cautiously guided by an old-timer, who after we finally manage to maneuver into our RV site, introduces himself as Graham. “Been here since the park first opened,”  he beams and then proceeds to point to each of the other trailers and run down who’s who:  “The ones behind you […]

Read More

Inaccessible

Spas are meant to be luxurious: relaxation sublime.   My daughter planned on it when she booked us into a top-rated facility for a morning of pampering. My daughter doesn’t have mobility issues.  It wasn’t her inner bitch that threatened to spoil the day. Should have known there’d be a problem by the absence of handicapped […]

Read More

Horizontal Champion

Sleeping in was a sin in my father’s eyes.  Even as a teenager, no matter how late we’d been out the night before, if we weren’t up with the sun, Dad would treat us to an icy face wash. The early bird catches the worm! Laziness was not tolerated either.  If we were ever caught […]

Read More

Time To Press Reset

Even when illness is chronic there is a tendency to look for signs and hope of healing.  It catches me every time : the false hope that I may have turned a corner. Undeniably, there is progress.  Last night I was able to bathe alone without worry of falling or passing out.  Last year, I […]

Read More

A Bad Day

ME/CFS is a mean mistress, whose sole purpose is to keep me down.  She is a dominatrix thriving on my submission, wielding her whip with heartlessness, and when she tires of the lashes – has me wincing in pain – she tosses the whip in my direction, tauntingly daring me to defend myself, knowing full well that […]

Read More

Better Is A Relative Expression

“How are you?” my friend asked me the other morning – an innocuous enough question, if the recipient is not suffering from chronic illness. Apart from the odd text here and there, I hadn’t talked to this friend for months, so I answered a pat: “Better.” I had really called her because I knew she […]

Read More