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How Illness Improved my Writing

It’s no mystery that stripped of all obligations and confined to a bed provides the coveted time to pursue writing skills, however; it is the actual experience of illness (in my case ME/CFS) that provides the platform for expansion.  Although I have been a ‘writer’ since my early years, the […]

A Glimmer of Hope

“Was I right about the doctor?”  the middle-aged receptionist asked cheerfully as I emerged from the examination room and waited for my next appointment. “He’s very good,” I agreed.  I had hesitated to see one more specialist after a history of dead ends trying to get a diagnosis for what […]

On Acceptance and Illness

“Grandma, when will you be better?” It is 5:00 on a school morning, and I am sitting at my granddaughter’s bedside nursing her through a sore tummy. “Not sure, Honey.” “Oh,” she shrugs.  She is four and has never known me any other way. Later, we snuggle up and watch […]

Still Loving My Doc

The challenge, when dealing with a chronic illness – in my case ME/CFS – is staying positive.  Momentary improvements in health are toppled by extreme crashes.  It’s like living in an eddy where, every once a while, the current quiets and it feels as if there might be an escape, […]

Body Talks

Listen to your body. Glib advice, especially if ignoring the body is habitual, and compliance is not listed as  a character trait. What would my body have to say, I wonder. My legs, stiff and inflexible, lumbering along like Frankenstein; are they telling me to put them up, resign myself […]

Doctor Love

I’m in love with my doctor. I realized it this afternoon, when having just returned from a quarterly visit; I opened my email to find three messages from his office, all with attachments outlining the new course of treatment he has assigned me. It’s not that I didn’t know the […]

Time To Press Reset

Even when illness is chronic there is a tendency to look for signs and hope of healing.  It catches me every time : the false hope that I may have turned a corner. Undeniably, there is progress.  Last night I was able to bathe alone without worry of falling or passing […]

A Day to Reflect

Taking a moment to remember all whose lives have been sacrificed that there might peace in the world to remember my father, his brother, my grandfather and the countless men, and women who fought for the right to live in a democratic country; for freedom of speech, and right to […]