Time To Press Reset

Even when illness is chronic there is a tendency to look for signs and hope of healing.  It catches me every time : the false hope that I may have turned a corner. Undeniably, there is progress.  Last night I was able to bathe alone without worry of falling or passing out.  Last year, I […]

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A Day to Reflect

Taking a moment to remember all whose lives have been sacrificed that there might peace in the world to remember my father, his brother, my grandfather and the countless men, and women who fought for the right to live in a democratic country; for freedom of speech, and right to religious practice, who dared to dream […]

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Life Lesson Rant

I get that this illness thing may be part of higher learning; a divinely inspired gift to awaken my soul, but really? My resume is already humongous – I am over-animated with life experiences.  Okay, okay, so we are co-creators, make life choices, must be engaged in the process, but what kind of school is […]

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Tough Stuff

Minutes after my first husband and I were settling into our honeymoon suite, I got a call from my father advising me that my oldest sister had gone from the wedding reception to emergency. “I think you better come,” he told me solemnly.  So we packed up and headed back. I had known that my […]

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Measured by Costco

Living with ME/CFS is often a matter of trial and error – the line between what the body is capable of and overexertion is never quite definable, except in the aftermath. Yesterday, I accompanied my daughter to Costco, which was teeming with cars and people.  We found a parking spot close to the entrance, and […]

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First Encounter with ME/CFS

Hesitantly, I turn the key in the lock and push the door ajar.  A waft of warm, stale air accosts me. “Hello?”  I’d been told there might not be a response. Something is resting against the door, so I push harder to let myself in.  The beam from the light of the open doorway is […]

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No Sailing At The Moment

I am learning to live in the moment, a lesson imposed by chronic illness.  No use regretting yesterday’s actions or inactions, and no point fretting about or planning the future.  What I know, is that there are moments of time, fleeting intervals that pass, some with profound relevance, some seemingly meaningless, and many in between. […]

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Things Are Looking Up

Had my third Ozonotherapy last week, and apart from feeling flushed and slightly dizzy afterwards (I then realized I was likely dehydrated) I have felt increasingly stronger. “Or is it that you have a new granddaughter?” my husband likes to play Devil’s Advocate. Having a new grandchild is definitely an energy boost – the motivation […]

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Functional Medicine Underway

As mentioned in an early post, I have recently consulted with a new doctor, whose expertise involves both traditional and functional medicine.  After years of trudging off to one specialist after another only to be told in the end that there is primarily nothing that can be done for me other than bed rest and […]

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Hawk Inspired

(A short story; fiction.) The grey days are the hardest; you know the ones, when the clouds, so full of tears, are working themselves up to a full-blown cry. My projection, I know, but I prefer to think that the weather mirrors my own inner gloom. I am less alone that way. This winter has […]

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