Dear Younger Self, On Our Birthday

Saw a picture of you today – us, just approaching sixteen – and instantly recognized the awkwardness with which you carry yourself: the painful self-consciousness, never knowing quite where you fit in or even if you are good enough to be in the picture.  Since today is our birthday, I decided to dedicate this post […]

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Measured by Costco

Living with ME/CFS is often a matter of trial and error – the line between what the body is capable of and overexertion is never quite definable, except in the aftermath. Yesterday, I accompanied my daughter to Costco, which was teeming with cars and people.  We found a parking spot close to the entrance, and […]

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Dream Offerings: New Perspectives

Dear Friend, I saw you in my dream; you were across the street and I caught myself hesitating – should I wave, acknowledge you, or keep on going?  Then you headed towards me, crossing what is now more a river than a street, there is so much water that has passed between us.  You gave […]

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Illness, Life’s Intruder

Before illness (ME/CFS), I had my life lined up, like a shopkeeper perfectly aligning her shelves, ready to get down to business.  One more course and I would be at the top pay scale, qualified to fill many shoes in the education field.  I had landed my dreamed-for job in Special Education, and was starting […]

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First Encounter with ME/CFS

Hesitantly, I turn the key in the lock and push the door ajar.  A waft of warm, stale air accosts me. “Hello?”  I’d been told there might not be a response. Something is resting against the door, so I push harder to let myself in.  The beam from the light of the open doorway is […]

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No One Will Ever Love You

A secret:  I had to teach myself how to receive love. Born fifth of my mother’s six children, I was unexpected – an ill-advised accident, given the difficulties my mother had in previous child births.  Conceived during a tumultuous time – after the father of her first children abandoned her, beaten and penniless – I […]

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Table Talk – A Dream Guide

I dream that Ric has removed our dining table.  There has been no discussion, no explanation, just an empty space to mark his actions. Even in my dreams, I am asking questions:  Is he having it repaired, or replacing it?  Surely, not replacing, I think, as the table was his mother’s.  I conclude that all […]

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Contemplating Wellness

“Four treatments should about do it,” the doctor advised while discussing approaches to tackling ME/CFS, which has kept me homebound for the past two years. “Once your body is stronger, we can tackle the Lyme disease.” Wednesday marked the final of four IV Ozone/Ultra-violet light/Glutathione treatments.  At the beginning of each visit, the patient is […]

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Things Are Looking Up

Had my third Ozonotherapy last week, and apart from feeling flushed and slightly dizzy afterwards (I then realized I was likely dehydrated) I have felt increasingly stronger. “Or is it that you have a new granddaughter?” my husband likes to play Devil’s Advocate. Having a new grandchild is definitely an energy boost – the motivation […]

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Tightrope Walking

While my husband remains in the Cardiac Surgery Recovery Unit (CSRU), I am struggling to maintain some sort of equilibrium so that my own health (ME/CFS) does not worsen.  It is a tightrope walk, for sure. The day of surgery, I went to the hospital twice, both for extended periods of time.  When I woke […]

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