Saw a picture of you today – us, just approaching sixteen – and instantly recognized the awkwardness with which you carry yourself: the painful self-consciousness, never knowing quite where you fit in or even if you are good enough to be in the picture. Since today is our birthday, I decided to dedicate this post […]
Living with ME/CFS is often a matter of trial and error – the line between what the body is capable of and overexertion is never quite definable, except in the aftermath. Yesterday, I accompanied my daughter to Costco, which was teeming with cars and people. We found a parking spot close to the entrance, and […]
Dear Friend, I saw you in my dream; you were across the street and I caught myself hesitating – should I wave, acknowledge you, or keep on going? Then you headed towards me, crossing what is now more a river than a street, there is so much water that has passed between us. You gave […]
Before illness (ME/CFS), I had my life lined up, like a shopkeeper perfectly aligning her shelves, ready to get down to business. One more course and I would be at the top pay scale, qualified to fill many shoes in the education field. I had landed my dreamed-for job in Special Education, and was starting […]
Hesitantly, I turn the key in the lock and push the door ajar. A waft of warm, stale air accosts me. “Hello?” I’d been told there might not be a response. Something is resting against the door, so I push harder to let myself in. The beam from the light of the open doorway is […]
A secret: I had to teach myself how to receive love. Born fifth of my mother’s six children, I was unexpected – an ill-advised accident, given the difficulties my mother had in previous child births. Conceived during a tumultuous time – after the father of her first children abandoned her, beaten and penniless – I […]
I dream that Ric has removed our dining table. There has been no discussion, no explanation, just an empty space to mark his actions. Even in my dreams, I am asking questions: Is he having it repaired, or replacing it? Surely, not replacing, I think, as the table was his mother’s. I conclude that all […]
“Four treatments should about do it,” the doctor advised while discussing approaches to tackling ME/CFS, which has kept me homebound for the past two years. “Once your body is stronger, we can tackle the Lyme disease.” Wednesday marked the final of four IV Ozone/Ultra-violet light/Glutathione treatments. At the beginning of each visit, the patient is […]
Had my third Ozonotherapy last week, and apart from feeling flushed and slightly dizzy afterwards (I then realized I was likely dehydrated) I have felt increasingly stronger. “Or is it that you have a new granddaughter?” my husband likes to play Devil’s Advocate. Having a new grandchild is definitely an energy boost – the motivation […]
While my husband remains in the Cardiac Surgery Recovery Unit (CSRU), I am struggling to maintain some sort of equilibrium so that my own health (ME/CFS) does not worsen. It is a tightrope walk, for sure. The day of surgery, I went to the hospital twice, both for extended periods of time. When I woke […]