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What Do You Want For Christmas?

“A Kinder Egg,” our four-year-old granddaughter wrote to Santa.th-2

“A kitten,” asked her cousin, aged five.

My kids sent me lists, as per my request, and my husband created a wish list on Amazon – mostly things for our motor home.

I have no idea what I want.  Truthfully, I have everything I need – a great family, loving husband, good friends, comfortable home, and wonderful help.

Chronic illness changes priorities.  My wants are simpler:

  • a Starbucks chai tea latte with coconut milk, half sweet.
  • homemade (gluten free) chicken noodle soup (my friend Sandy makes the best).
  • someone to lie on the bed with me and watch a movie
  • on better days, maybe an short outing so I can feel like I’m part of life
  • a telephone call from an old friend

Mostly, what I want, no one could ever provide:

  • a day without guilt, or shame for how my life has turned out
  • a promise that things will get better
  • one day to feel normal again
  • to be well enough to drive
  • forgiveness

th-1What do you want for Christmas?

 

 

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Categories: children ME/CFS memoir nonfiction Uncategorized

Tagged as:

V.J. Knutson

Writer, avid reader, former educator, and proud grandmother, currently experiencing life through the lens of ME/CFS. Words are, and always have been, a lifeline. Some of the best adventures, I'm discovering, take place in the imagination.

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