“A Kinder Egg,” our four-year-old granddaughter wrote to Santa.
“A kitten,” asked her cousin, aged five.
My kids sent me lists, as per my request, and my husband created a wish list on Amazon – mostly things for our motor home.
I have no idea what I want. Truthfully, I have everything I need – a great family, loving husband, good friends, comfortable home, and wonderful help.
Chronic illness changes priorities. My wants are simpler:
- a Starbucks chai tea latte with coconut milk, half sweet.
- homemade (gluten free) chicken noodle soup (my friend Sandy makes the best).
- someone to lie on the bed with me and watch a movie
- on better days, maybe an short outing so I can feel like I’m part of life
- a telephone call from an old friend
Mostly, what I want, no one could ever provide:
- a day without guilt, or shame for how my life has turned out
- a promise that things will get better
- one day to feel normal again
- to be well enough to drive
What do you want for Christmas?
Writer, avid reader, former educator, and proud grandmother, currently experiencing life through the lens of ME/CFS. Words are, and always have been, a lifeline. Some of the best adventures, I'm discovering, take place in the imagination.